Fighting isn't Really Living

At the risk of rubbing some people the wrong way, I need to say that I am deeply frustrated and angered at the culture of shame that makes people feel like they have to “fight” cancer.  Yes, I’ve lived through cancer 3 times and that involved fighting but that’s not all it took and that’s not what it’s all about.  It’s about life and love.

As I watch my mother decline and try to “fight” cancer even though the doctors keep telling her it’s incurable, advanced, and medically futile, I am enraged at her friend who had the gall to call me and tell me I wasn’t loving enough because I thought mom should choose palliative care. I’m pained to know my mom is in the hospital because of symptoms of chemo rather than at home enjoying time with friends.  And most overwhelmingly, I feel powerless to overcome the chorus of voices in my mother’s life who continue to shame her into fighting cancer instead of enjoying a few good months of friendship and love.

I know that the people mean well when they push her and I'm not questioning the motives behind that. I also know my mom is very scared and doesn't want to miss her next grandchild's birth. I just wish we could join together in a chorus of holding right now instead of disparate voices of mixed messages.

Tears of Hope

I’ve spent most of today crying.  This isn’t really surprising if you look at the current circumstances of my life.  My mother has terminal cancer, my work has some difficult pieces of conflict that will not have resolution for some time, and I have other family circumstances that I’m not free to discuss publically but worry me to literal sickness and fill me with dread.  But it’s not those things per se that have left me crying today.

Today, I’m crying because of a wonderfully whole yet complicated sense of vulnerability.  Last night at work, I sat with a family who discussed their child’s illness and I was struck in a different way by their experience of fear and dread.  I heard it in a way I had never fully understood emotionally even though I did intellectually and academically.  I heard their fear of death and it struck me in a deeply personal way. 

See, I’ve spent most of my life outrunning a legacy of abuse, crushing depression, and illness that have left me feeling as though my death would be a welcome thing.  In spite of my desire for my suffering in this world to end, I’ve pushed forward and lived what others would consider a full life.  I’ve cultivated a family, friendships, and pastoral relationships in a way that reflect my faith that every moment matters in spite of my desire for my suffering to end.

But a funny thing has happened over the past few years.  I’ve experienced healing in ways I didn’t imagine and I hope isn’t done yet.  I’ve moved into and through the suffering to a place of peace with most of it.  Some of it will always be there but I have a growing sense that I am not just my suffering.  Maybe a better way to say it is that I am now living more and more because I love life and not in spite of suffering.

Oh sure, I still have bad days and I suspect my predilection toward suicidal thoughts will always be there but it isn’t all I am.  Yet I’ve had to ask the question “who am I if I’m not suffering?” because so much of my identity has been built around my deep understanding of that experience.  Some would tell you that one of the reasons I’m such a good friend and chaplain is that people sense I truly understand their sorrow and I’m not afraid to go to the dark places with them.  In part, I believe that’s true. Nevertheless, I have a growing suspicion that it’s not the whole story.

All of this brings me to my tears of today.  Since listening last night to that family’s fears of their child dying, I keep flashing on my own precious life and all the things I don’t want to lose or leave behind.  I keep thinking of my wife, daughter, brother, and others who I love so deeply that their loss would break my heart into a thousand pieces.  I keep thinking about my own tenuous health and how desperately I don’t want to leave those things behind.

For the first time in my life, I love more than I hurt and so I want to cling to every precious second I have with those people.  Before, their loss would have been more shattering to an already pulverized soul.  Now, love lives so much larger that the thought of losing them or leaving them fills me with vulnerability and brings tears to my eyes in an ironically hopeful way.  I say ironically hopeful because it has taken finally outrunning my longing for death to realize that my new fear of death reflects healing and restoration.

I don’t know what all this will mean for my work as a chaplain.  I can’t imagine that it’ll have a negative impact.  But that’s not really today’s concern.  For now, I’m crying.  I’m crying for fear, for hope, for love.  And these tears are sacred.  Amen.